Main features of Facial Infiltrating Lipomatosis

What is FIL?

Facial Infiltrating Lipomatosis, or FIL, also called Congenital Infiltrating Lipomatosis of the Face,

an ultra-rare, noninherited overgrowth condition which is present at birth. Affecting one side of the face, ranging from mild to severe. Caused by activating mutations in the PIK3CA gene.

A diagnosis which can be isolated or associated with other conditions on the PIK3CA-Related Overgrowth Spectrum, or PROS.

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Facial Infiltrating Lipomatosis community WonderFIL smiles FILamily

JOIN OUR ONLINE COMMUNITY

We have a private Facebook group. A group solely for individuals with Facial Infiltrating Lipomatosis and their parents/partners.

About WonderFIL smiles

A global community for those affected by Facial Infiltrating Lipomatosis

Our FIL community started in 2017 as a group on Facebook. We lovingly named our group WonderFIL smiles inspired by the popular book Wonder by R.J. Palacio and the unique smiles of those affected by Facial Infiltrating Lipomatosis, or FIL for short.

If you have questions about FIL or are in need of support, please don't hesitate to contact us.

We aim to support people with FIL & their families, and to empower them with information, knowledge and connectivity.

Facial Infiltrating Lipomatosis community WonderFIL smiles

"My hope is for WonderFIL smiles to be what I wished had existed when my baby got her FIL diagnosis. Where those affected can get the information they seek and need and most importantly, to connect with other FIL patients and families, people who can genuinely say; I understand."

- Founder of WonderFIL smiles

About Facial Infiltrating Lipomatosis

About WonderFIL smiles

✉️ info(a)wonderFILsmiles.com

https://www.facebook.com/FacialInfiltratingLipomatosisCommunity/

Global Genes Rare Foundation Alliance Member

This website is intended to connect families and people with Facial Infiltrating Lipomatosis (FIL), share experiences, provide information and support.

It is not intended for medical diagnostic use or to replace medical consultation. No images on this website may be used or reproduced.