A noninheritable, ultra-rare craniofacial overgrowth syndrome affecting one half
of the face. Also often referred to as Congenital Infiltrating Lipomatosis of the Face (CIL-F). Typically noticable at birth by the asymmetrical cheeks. The condition is caused by a spontanious mutation in the PIK3CA gene. A diagnosis on a spectrum of diseases called PROS, PIK3CA Related Overgrowth Spectrum.
WonderFIL smiles is a community for those affected by FIL (/CIL-F). We are here to support you. On this website you will find a detailed description of Facial Infiltrating Lipomatosis, the genetic cause and get updated news about research & treatment options.
WonderFIL smiles is a registered nonprofit organization and is an international community for people with FIL and their families. We're actively working on improving the lives of those with FIL. We have an active online community and we would love to connect with you.
Get a full overview of Facial Infiltrating Lipomatosis (FIL) here.
Sign up to our mailinglist!
This website is intended to connect families and people with Facial Infiltrating Lipomatosis (FIL), share experiences, provide information and support.
It is not intended for medical diagnostic use or to replace medical consultation. No images on this website may be used or reproduced.
Copyright © 2020 WonderFIL smiles. All rights reserved. WonderFIL smiles is a registered non-profit organization.