We want you to know that you are not alone. Read our letter to those who have recently been diagnosed with Facial Infiltrating Lipomatosis.
Informational brochures for kids. One about Facial Infiltrating Lipomatosis (FIL) and one about PIK3CA Related Overgrowth Spectrum (PROS). You can find them both here. Italian versions are available. Please don't hesitate to reach out if you'd like one in a different language.
Read blogs by individuals affected by Facial Infiltrating Lipomatosis.
Advances made in precision medicine offer new hope to those affected by FIL and PROS conditions. We wish to make a difference and support this important research! 100% of proceeds will benefit research into FIL and PROS.
As a nonprofit organization we are also eligable to receive donations through Facebook fundraisers.
Make a secure donation by using the PayPal button below
Sharing your journey with PROS can advance new treatments
Because PROS (PIK3CA-related overgrowth spectrum) is rare, researchers need more information directly from those living with PROS and their families to understand the condition.
Your progression, symptoms and health challenges are all important clues to help researchers develop new treatments.
Join others living with PROS and their families on AllStripes to contribute to multiple research efforts:
① Go to allstripes.com/pros
② Create your account. Our team collects and
de-identifies your medical records
- no appointments, no cost.
③ Success — you’re a hero for PROS!
Our FIL community started in 2017 as a group on Facebook. We lovingly named our group WonderFIL smiles inspired by the popular book Wonder by R.J. Palacio and the unique smiles of those affected by Facial Infiltrating Lipomatosis, or FIL for short.
As of January 2020 WonderFIL smiles is a registered non-profit organization, headquartered in Norway and run completely on a voluntary basis. If you have questions or are in need of support, please don't hesitate to contact us.
We aim to support people with FIL & their families, and to empower them with information, knowledge and connectivity.
"My hope is for WonderFIL smiles to be what I wished had existed when my baby got her FIL diagnosis. Where those affected can get the information they seek and need and most importantly, to connect with other FIL patients and families, people who can genuinely say; I understand."
- Linda Roeksund, Founder of WonderFIL smiles
This website is intended to connect families and people with Facial Infiltrating Lipomatosis (FIL), share experiences, provide information and support.
It is not intended for medical diagnostic use or to replace medical consultation. No images on this website may be used or reproduced.
Copyright © 2022 WonderFIL smiles. All rights reserved. WonderFIL smiles is a registered non-profit organization.