Welcome to WonderFIL smiles
a Facial Infiltrating Lipomatosis (FIL) community
FIL (also referred to as Congenital Infiltrating Lipomatosis of the Face or as Facial Infused Lipomatosis) is an ultra-rare craniofacial condition caused by a genetic mutation of the PIK3CA gene. It is a condition on a spectrum called PROS, PIK3CA Related Overgrowth Spectrum. FIL is typically visable at birth as the mutation causes an overgrowth affecting half of the face.
Our mission with this website is to help connect persons and families affected by this condition, share information, experiences and be a supportive community.
It is also our goal to raise awareness and spread hope through supporting research.
This website is intended to connect families and people with the condition, share experiences, provide information and support. The website is not intended for medical diagnostic use or to replace medical consultation.
No images on this website may be used or reproduced.
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