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-June 13th 2018-

A group of 19 patients with PIK3CA Related Overgrowth Spectrum conditions all demonstrate great benefits from novel drug treatment, an alpha-specific PI3K inhibitor called BYL719. Please see links to articles here.

Facial Infiltrating Lipomatosis
Facial Infiltrating Lipomatosis
Facial Infiltrating Lipomatosis
Facial Infiltrating Lipomatosis

Welcome to WonderFIL smiles

a Facial Infiltrating Lipomatosis (FIL) community


FIL (also referred to as Congenital Infiltrating Lipomatosis of the Face or as Facial Infused Lipomatosis) is an ultra-rare craniofacial condition caused by a genetic mutation of the PIK3CA gene, thus called a PIK3CA Related Overgrowth Spectrum (PROS) condition. Typically visable at birth as the mutation causes an overgrowth affecting half of the face.


Our mission with this website is to help connect persons and families affected by this condition, share information, experiences and be a supportive community.

It is also our goal to raise awareness and spread hope through supporting research.


This website is intended to connect families and people with the condition, share experiences, provide information and support. The website is not intended for medical diagnostic use or to replace medical consultation.

No images on this website may be used or reproduced.

 

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