Please help us raise funds to support research to help people with
Facial Infiltrating Lipomatosis
Raised funds will go to the few who are researching this ultra-rare condition and who are trying to find a treatment.
There is currently no cure for this condition and treatment options are few. With surgical treatment there is a very high recurrence rate. It is only in the recent years they have identified the mutation in the PIK3CA gene as the cause. This gene is also found mutated in cancer so there are a few clinical trials in using cancer medication to treat PIK3CA overgrowth conditions.
This website is intended to connect families and people with the condition, share experiences, provide information and support. The website is not intended for medical diagnostic use or to replace medical consultation.
No images on this website may be used or reproduced.
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