About us

We are a group of parents of and people with Facial Infiltrating Lipomatosis (FIL for short). We've made this site in the hopes of connecting with even more, raise awareness and raise funds for research.

This condition is an ultra rare one and we wish to be a supportive community for the diagnosis holders and their families.

Currently about 25 people with the condition from America and Europe are connected through this community.

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This website is intended to connect families and people with the condition, share experiences, provide information and support. The website is not intended for medical diagnostic use or to replace medical consultation.

No images on this website may be used or reproduced.

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